{"id":16635,"date":"2021-09-28T09:19:00","date_gmt":"2021-09-28T09:19:00","guid":{"rendered":"https:\/\/haberglobal.com.tr\/teknoloji\/4-cocuk-annesi-youtuber-mel-thompson-hayatini-kaybetti-ehlers-danlos-sendromu-nedir-135331"},"modified":"2021-09-28T09:19:00","modified_gmt":"2021-09-28T09:19:00","slug":"4-cocuk-annesi-youtuber-mel-thompson-hayatini-kaybetti","status":"publish","type":"post","link":"https:\/\/istanbulchannel.net\/index.php\/2021\/09\/28\/4-cocuk-annesi-youtuber-mel-thompson-hayatini-kaybetti\/","title":{"rendered":"4 \u00e7ocuk annesi Youtuber Mel Thompson hayat\u0131n\u0131 kaybetti"},"content":{"rendered":"

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Yay\u0131nlanma: <\/span>

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4 \u00e7ocuk annesi Youtube fenomeni Mel Thompson’\u0131n hayat\u0131n\u0131 kaybetti\u011fi bildirildi.<\/p>\n

Ac\u0131 haberi, Thompson’\u0131n e\u015fi Puffin Thompson verdi.<\/p>\n

Instagram’dan bir a\u00e7\u0131klama yapsan Thompson e\u015finin \u00f6l\u00fcm nedenini a\u00e7\u0131klamad\u0131.<\/p>\n

Ancak \u00fcnl\u00fc Youtuber’\u0131n Ehlers-Danlos sendromu dahil bir\u00e7ok sa\u011fl\u0131k sorunuyla bo\u011fu\u015ftu\u011fu biliniyordu.<\/p>\n

“G\u00fczel bir insan\u0131 kaybettik. Onun sadece g\u00fcld\u00fc\u011f\u00fc foto\u011fraflar\u0131 payla\u015f\u0131yorum. Ne kadar sevildi\u011fini g\u00f6rmek g\u00fczel” diye yazan Puffin Thompson, “O herkesi sevdi, onu sevmeye ve sonsuza kadar \u00f6zlemeye devam edece\u011fim. Ailemiz i\u00e7in her \u015feydi” diye yazd\u0131.<\/p>\n

Ehlers-Danlos sendromu nedir?<\/strong><\/p>\n

Ehlers-Danlos sendromu (EDS) bir grup kal\u0131tsal ba\u011f doku bozuklu\u011fudur. \u00d6zellikle cildi, eklemleri ve kan damarlar\u0131n\u0131 etkiler. Ehlers-Danlos sendromunun 14 alt t\u00fcr\u00fc vard\u0131r. Hipermobil EDS (hEDS) t\u00fcr\u00fc hari\u00e7 di\u011fer EDS t\u00fcrlerinin genleri bulunmu\u015ftur. <\/p>\n

Bu sendrom 1898 ve 1908 y\u0131llar\u0131nda, Danimarkal\u0131 dermatolog Edvard Lauritz Ehlers ve Frans\u0131z doktor Henri-Alexandre Danlos’un ba\u011f doku gev\u015fekli\u011finin eklem hipermobilitisine ve cildin fazla uzayabilmesine yol a\u00e7t\u0131\u011f\u0131n\u0131 iki farkl\u0131 vaka \u00e7al\u0131\u015fmas\u0131nda bulmu\u015flard\u0131r. Hipermobil Ehlers-Danlos sendromu, di\u011fer alt t\u00fcrlerine g\u00f6re en s\u0131k g\u00f6r\u00fclenidir. Te\u015fhis i\u00e7in t\u0131bbi ge\u00e7mi\u015f de\u011ferlendirmesi ve klinik g\u00f6zlem yap\u0131lmas\u0131 gerekir. hEDS i\u00e7in Beighton skoru kullan\u0131larak eklem hipermobilitesi derecesi \u00f6l\u00e7\u00fcl\u00fcr. Genel olarak doktorlar\u0131n EDS hakk\u0131nda bilgisi az oldu\u011fundan nadir hastal\u0131ktan ziyade nadir te\u015fhis konulan bir sendromdur.<\/p>\n

1988 y\u0131l\u0131nda Berlin s\u0131n\u0131fland\u0131rmas\u0131na g\u00f6re, 11 t\u00fcr Ehlers Danlos vard\u0131 ve bunlar romen rakamlar\u0131 ile g\u00f6steriliyordu. 1998 y\u0131l\u0131ndaki Villafranche s\u0131n\u0131fland\u0131rmas\u0131na g\u00f6re, bu sendromun alt\u0131 alt t\u00fcr\u00fc vard\u0131. 2017 y\u0131l\u0131nda Ehlers-Danlos Society taraf\u0131ndan olu\u015fturulan bir grup doktor, genetik bulgularla fizyolojik bulgular\u0131 birle\u015ftirerek yeni bir s\u0131n\u0131fland\u0131rma yaratt\u0131. Bu 2017 uluslararas\u0131 Ehlers-Danlos sendromu s\u0131n\u0131fland\u0131rmas\u0131na g\u00f6re eski isimler korunup, t\u00fcm tiplerin te\u015fhis kriterlerini \u00f6zellikle hipermobil EDS’nun kat\u0131la\u015ft\u0131rd\u0131lar. Ehlers-Danlos sendromu sadece hatal\u0131 kolajen proteini sentezi de\u011fil, ADAMTS2, Tenascin XB gibi proteinlerde etkilenebiliyor. En s\u0131k klasik Ehlers-Danlos, vask\u00fcler Ehlers-Danlos ve hipermobil Ehlers-Danlos g\u00f6r\u00fcl\u00fcyor.<\/p>\n

Ehlers-Danlos sendromunun \u00e7\u00f6z\u00fcm\u00fc yoktur ancak semptomatik tedavi uygulan\u0131r. Kardiyovask\u00fcler sisteminin yak\u0131ndan takip edilmesi, fizik tedavi, ortopedik aletlerle (tekerlekli sandalye, korse, atel, vb.) hasta rahat ettirilir.<\/p>\n

Kaynak: Haber Global<\/p>\n<\/p><\/div>\n","protected":false},"excerpt":{"rendered":"

\u00dcnl\u00fc Youtuber Mel Thompson 35 ya\u015f\u0131nda hayat\u0131n\u0131 kaybetti. …<\/p>\n","protected":false},"author":2,"featured_media":16636,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[185,187],"tags":[],"class_list":["post-16635","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-manset","category-teknoloji"],"_links":{"self":[{"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/posts\/16635","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/comments?post=16635"}],"version-history":[{"count":0,"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/posts\/16635\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/media\/16636"}],"wp:attachment":[{"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/media?parent=16635"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/categories?post=16635"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/istanbulchannel.net\/index.php\/wp-json\/wp\/v2\/tags?post=16635"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}